My daughter who is 9 has PKU (http://ift.tt/1tOhfQF )
today we have recived a letter from the gp saying they can't put certain stuff like choc cake mix and puddings on prescription. As the ccg have said they are luxury items and we will have to pay for them
she has been getting this stuff since she was little
what would be the best way of taking on the ccg and gp ?
It seems neither has a clue about PKU as it only effects one in 10,000 and there are only 2 people in my county that has PKU
we have even been fighting dla for 16 months an have just won as they didn't have a clue about PKU
today we have recived a letter from the gp saying they can't put certain stuff like choc cake mix and puddings on prescription. As the ccg have said they are luxury items and we will have to pay for them
she has been getting this stuff since she was little
what would be the best way of taking on the ccg and gp ?
It seems neither has a clue about PKU as it only effects one in 10,000 and there are only 2 people in my county that has PKU
we have even been fighting dla for 16 months an have just won as they didn't have a clue about PKU
Taking on clinical commission group
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